My daughter, Sofia,* was born premature with short bowel syndrome. That means that she cannot take in nutrition on her own. After several surgeries near our home, the doctors said she would die. Fortunately, I was able to get specialized help from Children’s Hospital Los Angeles, and now, thanks to their amazing care, Sofia is four years old. Sofia receives intravenous nutrition 14 hours a day and needs to visit the hospital every six weeks. Without the treatment provided by Children’s Hospital, Sofia will die.
Due to unexpected changes in our circumstances, we’re navigating an urgent situation that could impact Sofia’s continued medical treatment at Children’s Hospital Los Angeles. Any support during this uncertain and difficult time would mean the world to us and help us stay focused on her care.
*To protect my daughter’s privacy, we are using the pseudonym “Sofia.”
